Tag Archives: Journal of Bioethical Inquiry

New open-access editorial for the Journal Bioethical Inquiry on Ethics and Reproduction: “Rearranging Deck Chairs on a Sinking Ship?”

In the spirit of a “Bioethics Forecast,” at the beginning of 2017 I made some predictions for what would keep us bioethicists busy for the rest of the year (Camporesi 2017). Of course, as with most predictions, most of mine missed the mark. As 2017 comes to a close and we prepare to turn the page and welcome the new year, it is worth looking back at some of them to reflect on the main bioethics, and biopolitics, features of this year. Of the ten forecasts I made at the beginning of 2017, in my role as Associate Editor for Ethics and Reproduction I will comment only on those pertaining to reproductive ethics. I will then conclude with some more general reflections on the state of bioethics. Disclaimer: many of the topics below are skewed towards the United Kingdom, the country where I work.

The full content of this editorial is available open access here:

https://link.springer.com/article/10.1007/s11673-018-9840-2

 

Preview! Online first – selected articles from the Journal of Bioethical Inquiry Public Trust in Expert Knowledge Symposium

Guest Editors: Dr Silvia Camporesi, Bioethics & Society, King’s College London, London UK; Dr Maria Vaccarella, Medical Humanities, University of Bristol, UK; Dr Mark Davis, Sociology, Monash University, Melbourne, Australia.

Trust_FreeImages.com_Berkeley-Robinson-470x260Timeline for publication

The special issue is expected to appear online in late January 2017 and in print in June 2017

Five articles are already available online ahead of print publication!

TABLE OF CONTENTS

  1. Silvia Camporesi, Mark Davis and Maria Vaccarella, “Investigating Public Trust in Expert Knowledge:  Ethics, Narrative and Engagement”
  2. Katie Attwell, Julie Leask, Samantha Meyer, Philippa Rokkas, and Paul Ward, Murdoch University, Australia, Vaccine rejecting parents’ engagement with expert systems that inform vaccination Programs”
  3. Daniel Z. Buchman, Anita Ho, and Daniel S. Goldberg, University of Toronto, “Investigating Trust, Expertise, and Epistemic Injustice in Chronic Pain”
  4. Deborah Bowman, St George’s Medical School, University of London, “The Moral of the Tale: Stories, Trust and Public Engagement with Clinical Ethics via Radio and Theatre”
  5. Jennifer Edwell, and Jordynn Jack, University of North Carolina at Chapel Hill “Gestational Diabetes Testing, Narrative, and Medical Distrust”
  6. Karen Anne-Wong, University of Sydney, Australia Donor Conception and ‘Passing’: Why Australian Parents of Donor-Conceived Children Want Donors Who Look Like Them

About the special issue:

Trust pervades personal, social and political life. Basic trust is seen as the foundation of self, trust figures in the everyday reciprocity of social relations, and governmentality is imbued with questions of trust and distrust. Trust in expert knowledge (i.e. willingness to believe, endorse and enact expert advice) has emerged as a problem for governments seeking to engage and influence publics on matters as wide-ranging as public policy on the environment and economic development, biopolitics, and wellbeing over the life course. The knowledge systems which support climate change policy have been criticized and even refuted, leading to public policy challenges for action on climate. The uptake of vaccines in populations appears to be eroding and scientific/ethical controversies have marked the field. The emerging ‘superbugs’ crisis requires that publics engage with the idea that antimicrobials are no longer available to the extent they once were. Biotechnological interventions in reproductive life and health are subject to changed expectations for expert and consumer rights and responsibilities. Against this backdrop of troubled trust, expert knowledge and changing bio/ thanopolitics, how can governments engage publics? How do public communications take effect? How do experts and publics narrate trust? What are the ethical ramifications of efforts to garner, sustain or regain public trust? As some have argued, are we already post-trust and therefore in alternative modes of public engagement with the idea of collective life?

This special issue is the first of its kind to examine the ethics of public trust in expert knowledge systems in emergent and complex global societies. Through an interdisciplinary approach, it draws from contributions in bioethics, the social sciences and the medical humanities.

“Investigating public trust in expert knowledge: ethics, narrative and engagement” special issue Journal of Bioethical Inquiry invites submissions

We invite the submission of papers for a forthcoming (2017) special issue of the Journal of Bioethical Inquiry on “Investigating public trust in expert knowledge: ethics, narrative and engagement”.

The special issue will be the first of its kind to examine the ethics of public trust in expert knowledge systems in emergent and complex global societies. Through an interdisciplinary approach, it will draw from contributions in bioethics, the social sciences and the medical humanities.

Guest Editors: Silvia Camporesi (King’s College London), Mark Davis (Monash University), Maria Vaccarella (University of Bristol)

Trust_FreeImages.com_Berkeley-Robinson-470x260

Summary

Trust pervades personal, social and political life. Basic trust is seen as the foundation of self, trust figures in the everyday reciprocity of social relations, and governmentality is imbued with questions of trust and distrust. Trust in expert knowledge (i.e. willingness to believe, endorse and enact expert advice) has emerged as a problem for governments seeking to engage and influence publics on matters as wide-ranging as public policy on the environment and economic development, biopolitics, and wellbeing over the life course. The knowledge systems which support climate change policy have been criticized and even refuted, leading to public policy challenges for action on climate. The uptake of vaccines in populations appears to be eroding and scientific/ethical controversies have marked the field. The emerging ‘superbugs’ crisis requires that publics engage with the idea that antimicrobials are no longer available to the extent they once were. Biotechnological interventions in reproductive life and health are subject to changed expectations for expert and consumer rights and responsibilities. The recent explosion of the CRISPR genome editing debate has brought with it socio-technical expectations (e.g. CRISPR technologies as a panacea for a world rid of diseases from birth, and some say even of ageing), together with fears of eugenics and a return to the discourse of designer babies, which now seem a possibility. Public life is marked also by the questions of trust, knowledge and ethics implicated in end-of-life decision making, related controversy over physician-assisted suicide and other questions of life’s limits. Against this backdrop of troubled trust, expert knowledge and changing bio/ thanopolitics, how can governments engage publics? How do public communications take effect? How do experts and publics narrate trust? What are the ethical ramifications of efforts to garner, sustain or regain public trust? As some have argued, are we already post-trust and therefore in alternative modes of public engagement with the idea of collective life?

Topics

Contributions are solicited from the above disciplines that look at the role of narratives in the construction and deconstruction of public trust in expert knowledge and at ethical or unethical ways of engaging with the publics on a variety of topics, including but not limited to:

  • sustainability and climate change
  • public policy and economic development
  • vaccination and other biotechnologies
  • emerging infectious diseases, including superbugs
  • reproductive health
  • provider-consumer relations in health care and beyond
  • genetics, including genome editing technologies (e.g. CRISPR/Cas9)
  • race
  • end-of-life decision making

Methodologies:

We seek contributions that apply narrative approaches to bioethics, sociology, and medical humanities.

The special issue will consist of 8-10 contributions that employ a variety of methodological approaches for a recommended length of 7,000-7,500 words each.

Instructions for authors for submission to JBI can be found here:

http://bioethicalinquiry.com/wp-content/uploads/JBI_IFA.pdf

Abstract Submission and Timeline

Extended abstract of 750 words should be submitted to Dr Silvia Camporesi by January 25, 2016. Please clearly state in your abstract the methodology you are employing in your paper, and how your contribution addresses the topic of the special issue ‘‘Investigating public trust in expert knowledge: ethics, narrative and engagement’.

A decision on the abstract will be notified by Feb 15, 2016.

Full papers are expected by May 1, 2016.

Reviewed papers will be returned to authors by August 1, 2016.

Revised papers are expected by October 1, 2016.

The special issue is expected to appear in print in June 2017.

For inquiries contact Dr Silvia Camporesi: silvia.1.camporesi@kcl.ac.uk