Ethics & Public Policy

This page is an updated repository of my current and past research on ethics and public policy. If you would like to read an article but don’t have an institutional subscription, email me to request it at my KCL address and I will send it to you. Thank you for your interest!

SPOTLIGHT ON CURRENT RESEARCH 

Expert knowledge and expertise are increasingly important to support of effective decision making. In response to the Covid-19 outbreak, most nations have put in place new institutional mechanisms to secure expert advice in a variety of contexts to inform public health response.

I am leading the Italy case study, with Professor Federica Angeli, Chair in Management at the University of York, as co-lead. We are assisted in this research by Giorgia Dal Fabbro of the University of Trento. Alongside collecting and analysing relevant policy documents, we are now in the process of interviewing key stakeholders, including members of the Italian Technical and Scientific Committee (Comitato Tecnico Scientifico Nazionale, or CTS); members of other expert committees and task force groups, both at national, and at regional level, policy-makers and politicians.

For more information about the ESCaPE Italy project, or if you would like to put yourself forward as a key stakeholder for an interview, email me at:

silvia.camporesiATkcl.ac.uk

This is an international research project, led by Prof. Roger A. Pielke Jr at the University of Boulder in Colorado performs a comparative, international evaluation of mechanisms of science and more in general of expert advice in the pandemic emergency. The purpose of the project is to comparatively investigate the ways in which scientific knowledge is being used to inform policy in response to the Covid-19 emergency.

Camporesi, S. (2020) It Didn’t Have to be This Way: Reflections on the Ethical Justification of the Running Ban in Northern Italy in Response to the 2020 COVID-19 Outbreak.  Bioethical Inquiry. https://doi.org/10.1007/s11673-020-10056-1 In this paper I discuss the ethical justifiability of the limitation of freedom of movement, in particular of the ban on running outdoors, enforced in Italy as a response to the COVID-19 outbreak in the spring of 2020.

Camporesi, S., & Mori, M. (2020) Ethicists, doctors and triage decisions: who should decide, and on what basis? Journal of Medical Ethics Published Online First: 10 July 2020. doi: 10.1136/medethics-2020-106499

Camporesi, S. Davis M, Vaccarella M (2017). Investigating public trust in expert knowledge: ethics, narrative, and engagement. Journal of Bioethical Inquiry. 14(1), 23-30. “Public Trust in Expert Knowledge: Narrative, Ethics, and Engagement” examines the social, cultural, and ethical ramifications of changing public trust in the expert biomedical knowledge systems of emergent and complex global societies. This symposium was conceived as an interdisciplinary project, drawing on bioethics, the social sciences, and the medical humanities.

Zeng, X., Zannoni, L., Löwy, I., & Camporesi, S. (2016). Localizing NIPT: Practices and meanings of non-invasive prenatal testing in China, Italy, Brazil and the UK. Ethics, Medicine and Public Health, 2(3), 392–401.

Maddock C, Camporesi S, Lewis I, et al. (2011) Online information as a decision making aid for cancer patients: Recommendations from the Eurocancercoms projectEur J Cancer, doi:10.1016/j.ejca.2011.08.018. This paper is the result of a pan-European survey conducted under the auspices of the FP7 Eurocancercoms project during the period September 2010-March 2011. The survey was designed to broaden public policy understanding of patients’ specific needs when seeking online cancer information and aimed to identify gaps in the online cancer information provision across Europe.

Fojo T, Siderov J, Williamson S, Camporesi S, McVie JG, et al (2011)  Delivering affordable cancer care in high-income countriesLancet Oncol;12(10):933-80. The burden of cancer is growing, and the disease is becoming a major economic expenditure for all developed countries.  This is not simply due to an increase in absolute numbers, but also the rate of increase of expenditure on cancer. What are the drivers and solutions to the so-called cancer-cost curve in developed countries? How are we going to afford to deliver high quality and equitable care? In this paper we address the barriers and solutions to delivering affordable cancer care and identify several drivers of cost, such as over-use, rapid expansion, and shortening life cycles of cancer technologies, and the lack of suitable clinical research and integrated health economic studies.

Pritchard-Jones K, Lewison G, Camporesi S, et al. (2011) The state of research into children with cancer across Europe: new policies for a new decadeecancermedicalscience; 5(210). DOI: 10.3332/ecancer.2011.210. Overcoming childhood cancers is critically dependent on the state of research. As part of the EU funded Eurocancercoms project to study and integrate cancer communications across Europe we have carried out new research into the state of research in childhood cancers. Over a 6-week period in 2010 a survey was conducted through the offices of SIOPE (the European Society of Paediatric Oncology) of key opinion leaders across Europe to determine their views on the state of paediatric oncology at both national and European level through a framed questionnaire. The responses are outlined in this report and form the basis for spelling out new policies for paediatric oncology in Europe aimed at increased harmonisation, consistent guidelines and at the establishment of a common platform for translational clinical trials.

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